Sourcetop personalizes
Photo by Alessandro Vallainc

Northwell / CRiS

Personalized patient and caregiver bladder cancer portal for the National Cancer Institute.

Northwell Health, in conjunction with Fox Chase Cancer Center and Maimonides Medical Center, wanted a personalized “digital handbook” for bladder cancer patients and their caregivers to learn about their procedure, help recover quicker and transition to new routines faster, improving overall health post-treatment.

The Cancer Resource Information Support (CRiS) platform covers three types of surgery: Ileal Conduit, Indiana Pouch and Neobladder tailored to both patients and caregivers with the goal of empowering them to better cope with muscle invasive bladder cancer treatment. 

Patients and Caregivers are given tablets to take home for six months with preregistered but anonymous logins to avoid any PII or PHI requirements. Each user is assigned rights based on a matrix of Procedure, Hospital and User Type.

To keep the content management effort down, we built a unified platform and page structure with page, section and individual item access control based on the user's permissions. 

Videos recorded by a team of doctors from each hospital goes over each procedure and post-surgical recovery. Each user is shown the same text and images but the videos are based on their given hospital and doctor for a personalized experience. Each page visit and video session is recorded for analytics with procedure, hospital and anonymized patient metrics both separately and combined to conduct a study against a control group to measure the effectiveness of the tool.

Users also have access to patient contributed videos from all three hospitals that cover real-world experiences with peer advice and tips.

Caregivers are shown additional content to cover relevant information specific for their role. From getting organized and managing medications to coping skills and learning how to discuss cancer with their loved ones. They also have peer videos providing additional support from a caregivers perspective.

Rounding out the platform is a robust glossary and resource section with outside links, survivorship plans and downloadable pdfs to record provider information.

The study is ongoing but early results show patients are adapting faster to their new life and require less interactions with their doctor for basic guidance allowing for more quality time during doctor / patient visits.